Wow. Why did you need such a long fusion? And what can you and what can't you do now?
If you're in the U.S., that's a 500k surgery. My daughter had it done 2 years ago for scoliosis, but the end result is the same: she came out of surgery 2.5 inches taller, and no more back, leg, or rib pain, no more numb hands or feet, and she can breathe again.
She had a double major with the *good* curve over 60°.
Edit: for those who sent me a dm, calling me a liar, here's the bill for just the surgery, none of the pre-surgical work. https://imgur.com/3Kh6r1P
I'm fused from T2-T8! I don't know anyone else with such dramatic fusion. Mine's not kyphosis though, when I was 16 I broke my back after falling out of a window.
That was six years ago now, and I'm 22 now (just graduated!). Please let me know if you have any questions about recovery, the road is long but so rewarding. I wish you the best!
I had spinal fusion 10 years ago at 19 due to severe spinal slippage (spondylolisthesis). Out of 5 grades of severity, I was at a 4. It was life changing and recovery was brutal. I owe all my strength and perseverance to it. I am rooting for you and I wish you all the best in life!
Thanks for this. It's reassuring to know about others experience and that coming to terms with pain is workable.
I feel very lucky to have had a corrective surgery on my back after the first one went bad. Long story short: Cobra expired and I didn’t have insurance.
Found a doctor who performed a L4/5 Discectomy & Laminectomy (where they take out part of the vertebrae to make room for the spinal cord due to Stenosis. It went bad and there is nothing I can do about it. They left me with bad scar tissue. Luckily I got some assistance 5 years later (after a lot of pain) and a good doctor was able to stop my nerve pain.
However, I've still got Scoliosis (lil mild) so I’m looking at alternative treatments like this https://www.youtube.com/watch?v=jEUB1YfQsgo
cause my upper back is starting to cause pain with 3 herniated discs and my lower will eventually need to be fused at some point.
Despite all this crap I still feel very lucky to be persistent and never let anything stop me from any goals. I also never take for granted those who aren't as lucky as me. One thing that always gets me though is after moving to Texas or anywhere, every time I see a new doctor they always treat me like I'm a drug addict and don't seem to understand that I will have to live with this pain. I've done my best to deal with it without medication but there will always be days I just need it.
I think I may have finally found a doctor that (after a year and several drug tests and previous MRI's and surgery documents) believes me and we're starting to work together instead of her against me. Part of it is due to the stupid laws that make it hard for them so I understand to a certain degree.
sheesh…that was cathartic
Thanks again for sharing your experience at such a private moment. It is helping me feel not alone in managing pain from back surgeries and I wish you all the best!